Caleb's been satting low for the last few days. His baseline has dropped to around 71 and he dips into the 60's. They did an echo yesterday to try to determine the cause of his dips; however, it didn't show any reason. He may just be growing towards his Glenn surgery. The echo showed his heart function is still depressed- no change for the better or worse. His shunt was slightly narrowed. They are not changing any medicines. He was started on .1 L oxygen early this morning to keep his saturation within range.
He did really good during his physical therapy session yesterday. He tolerated tummy time and didn't get upset immediately. Last night, he was very happy and observant for a good while. He enjoyed looking at a toy aquarium and following the bubbles and fish move. It is on the right side of his crib to try to encourage him to stretch the muscles in that side of his neck (he prefers to lay to the left). He also enjoyed looking at a book. He can't wait for his sister and brothers to read to him! Today I got to walk him outside. It was a gorgeous day. He just closed his eyes and "sunbathed" in the shade. We didn't get to stay out long, though, because his monitors weren't picking up on the floor from the corner of shade we were trying to stay in.





He is such a photogenic little guy! SOOO Cute! :) What a real treat to feel the sunshine and the breeze...so good for both of you! Hope you can do the field trip again soon and regularly on the roof! All such good news that he is holding his own and getting ready for his next surgery! Stay positive! All of his symptoms sound so familiar, he is getting ready to graduate from his shunt... It is hard to believe so much time as already gone by (to us) but I know it has seemed like a very, very, very, long time to you all! Looking forward to the next update and hope you getting lots of breaks away from the hospital to be with the FAMILY! :) Much Love, The Severson's
ReplyDelete