Discharged

He's getting discharged today without an official diagnosis of why it's happening.   He has been having episodes of hypoglycemia with hyperinsulinism.  Suspect is that it is related to his Nissen Fundoplication, called Postprandial hypoglycemia (late phase Dumping Syndrome), in which his food moves into his small intestine rapidly causing a rapid rise and fall in his blood sugar level.  We will go home with a glucometer and will check his blood throughout his day and night and monitor closely for changes in behavior.  He had PVC's overnight and went into vtach.  They had to draw blood for stat labs, but had great difficulty.  A PCICU doc came up and after much trial, was able to get an arterial stick in his groin. All of this work up and the frequent blood pricks have caused an increase in his anxiety towards even just seeing gloves on anyone's hands!  But in spite of it all, the sweet guy has blown a million kisses to everyone. He loved riding around in the new cars on the floor, blowing kisses and saying "hi"!

Endocrinology- low blood sugar levels

Labor Day turned into another hospital stay.  After contemplating whether or not to bring him in much of the day, we ended up in the ED around 11:30 pm.  He was febrile (but very low grade) and in respiratory distress.   Initial blood results showed he was dry, low white cell count, & very low blood sugar.  They gave fluids and sugar and admitted him to the PCICU.  They ran many tests- ct scan, lumbar puncture, echo, EKG, EEG, lots of bloodwork- but all came back negative.  They started him on IV antibiotics to cover any possible infection.  He has been so lethargic, wanting to sleep all of the time, and if he awoke, he was not "there"-  eyes rolling, tongue deveating.  We've questioned many times if he was seizing.  Last night and then again this morning, his arms stiffened and tongue repeatedly deveating, and his eyes rolled back over and over.  His blood sugar was very low on the morning labs (46).  After the seizure activity, they immediately checked it again (44).  Endocrinology was called and they requested many blood tests to determine the cause of these drops.  Glucose came back immediately (it had dropped more to 33 !).  We're waiting on the results of the remaining tests and tracking levels throughout the day and night to formulate the next steps.  Praying for answers to this new situation.  He's not pleased with being pricked as frequently as this is requiring, but we are thankful to maybe be on a track to understanding recent behaviors.