Caleb looks great today. He sleeps great and has a lot of awake time. He really wanted to suck on the ventilator and was even trying to fit his fingers in his mouth along with the tube-- didn't work. He went on another field trip today, which is always a production requiring many to help get him set up to go and they bag vent him the whole way. They took him down to fluoroscopy to do a moving x-ray which showed his diaphragm moving (or not-moving) and how it is affecting his lungs while he breathes. After review, the surgeon said that Caleb needs to have the surgery to plicate his diaphragm. He is scheduled for tomorrow.
On a different funny note, I'm attaching a picture of Zack's car that I drove today. Thank you Greg for going and getting glue for the hanging side mirror and a headlight cleaner kit so that we can see!!! For all that know Zack and his history of car issues- from a bullet in his windshield, having his doors stolen, no air or windows that role down (these were all in his previous car), this is nothing to him, but I'm not so used to driving it! :o)
Please pray for Caleb as he undergoes his second surgery in two weeks.
I just wanted to say a quick hi! My daughter, Aili (4.5 years old), has HLHS. They also just realized her left side of her diaphragm isn't and hasn't been working. Looks like she will need surgery for that too. If you need anything or have any questions, let me know!
ReplyDeleteI hardly ever write in it, but we do have a blog too - www.ailirae.blogspot.com