On a different note, I went to the little boys' Muffins with Mom this morning at their Mother's Day Out. We are so blessed to be at an amazing preschool. It is such a super special group of teachers, staff and families. Bo, once again, was like a little leach, not letting go of my leg. He was very proud to give me a handmade card, beautiful flower in a specially painted pot, and attempt to sing a special song. Cooper just wanted to eat a LOT of muffins ( I stopped counting). He made the most beautiful bracelet for me out of shrinky dinks! It was a wonderful morning.
“Be anxious in nothing, but in everything, by prayer and petition, with thanksgiving, make your requests known to God. Then the peace of God that surpasses all understanding will guard your hearts and your minds in Christ.” Philippians 4: 6-7
Thursday, April 25, 2013
Lung issues- IPV Therapy
So, I'm starting to think Caleb is getting used to the ventilator. (me- not so much!) Today he has been sucking on it, and not just a little (which he's been doing), but actually like it is a pacifier- loud. They are concerned about his lungs and did IPV (Intrapulmonary Percussive Ventilation) therapy and then took an X-ray this morning and then redid both again midday. After comparing the two, this afternoon's X-ray of his lungs looks worse and one side of his diaphragm looks more enlarged which could be putting pressure on the lungs. The lungs appear to have spots that are partially collapsed. They are going to stop c papp trials and just let him rest on the ventilator overnight which will prayerfully expand his lungs. An X-ray will be repeated in the morning and then possibly do a "moving X-Ray". There are a lot of questions about why the X-rays look like they do. One guess is that there are little nerves around the diaphragm and during surgery one could possibly have been nicked. Thankfully, his blood gases all look good and he appears good. Just pray that a good day and night of rest is all that he needs. Sometimes, just rest works and then they take them off the vent and they do great; other times, they have to go back to surgery and tack the diaphragm down. Praying for the lesser invasive to work!!!
On a different note, I went to the little boys' Muffins with Mom this morning at their Mother's Day Out. We are so blessed to be at an amazing preschool. It is such a super special group of teachers, staff and families. Bo, once again, was like a little leach, not letting go of my leg. He was very proud to give me a handmade card, beautiful flower in a specially painted pot, and attempt to sing a special song. Cooper just wanted to eat a LOT of muffins ( I stopped counting). He made the most beautiful bracelet for me out of shrinky dinks! It was a wonderful morning.
On a different note, I went to the little boys' Muffins with Mom this morning at their Mother's Day Out. We are so blessed to be at an amazing preschool. It is such a super special group of teachers, staff and families. Bo, once again, was like a little leach, not letting go of my leg. He was very proud to give me a handmade card, beautiful flower in a specially painted pot, and attempt to sing a special song. Cooper just wanted to eat a LOT of muffins ( I stopped counting). He made the most beautiful bracelet for me out of shrinky dinks! It was a wonderful morning.
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All I can say us you are one amazing mother. Your spirit is good and your ability to share your time. I know the boys enjoyed your presence as you did so much more. We keep Caleb in our prayers and you and the family. Make sure you are taking care of yourself...they are all depending on you. The Graham's
ReplyDeleteHave no anxiety at all, but in everything, by prayer and petition, with thanksgiving, make your requests known to God. Then the peace of God that surpasses all understanding will guard your hearts and minds in Christ Jesus. -Philippians 4:6-7
Dear Ashley, Zack and Family,
ReplyDeleteWe will continue the walk, 3 steps forward, 2 steps back, 3 steps forward....and so it goes. It seems to be the path of HLHS recovery... I regret that I forgot to tell you that Will had paralysis of one side of the diaphragm from his first surgery as well, perhaps it would have made it less defeating to hear that Will also had that when it was discovered with Caleb. I apologize that I have forgotten so many details, and in time, you will too...all a distant memory...Caleb is STRONG and by the looks of the video he is getting ready for REAL EATING VERY SOON! What a strong Suck! :) ...ALL VERY GOOD SIGNS :) Prayers for vent freedom when he is ready coming your way! Each day is getting him closer to losing each tube one by one...but "work" it truly is...Our Love, Prayers and Hugs, The Severson Family