Appointments after Appointments

Caleb's had a great transition home.  He really likes his side now-- prefers to sleep on his side and is starting the process of leaning to his side from a back position (beginning of the roll process).  He's still not a fan of tummy time, but we try to encourage it with fun toys and siblings!  Yesterday was full with doctor appointments.  We started with surgery for a Mickey button check.  From there, went to hematology.  They had to draw blood to check his Lovenox levels, which is always torturous.  After attempts in all extremities, and nearing respiratory distress, they called in IV therapy team to draw from his scalp, which tends to be the easiest access.  I'm will ask for them from here out.  They are also trying to determine whether he has a clotting disorder or if the clot is simply due to the number and length of procedures and access he has had.  They tried to prepare me that he will likely require the shots twice daily for a while-- probably up to a year after his Fontan surgery!!!  It is just such a critical location.  Last, we went to Neurology-  we were very late by the time they finally finished his blood work.  (3 appointments back to back on a Friday afternoon was definitely shooting for the moon thinking we'd make them all on time!). I was so glad to finally get this clinic appointment in- it's been cancelled multiple times because of his hospital stays.  The doctor increased his medicine for weight gain and prescribed a med that we will have to keep with us at all times should he have a seizure.

All in all, it was a long day, but felt very productive!

Today, we are enjoying blessed family time, watching the boys' baseball games from the warmth of the car!!  So grateful we can cheer them on.